Workshop "Democratizing the Health Data Ecosystem: From Challenges to Solutions"
The 8th workshop of the Personalized Health Series is jointly organized by Personalized Health Basel (PHB), University Hospital Basel (USB), and DayOne.
Date: October 30, 2025
Time: 13:00 - 18:00
Venue: Biozentrum, University of Basel, Spitalstrasse 41, 4056 Basel
The digital transformation of healthcare relies, among other things, on the responsible and effective sharing of clinical data. While the potential is tremendous—enhancing patient care, enabling medical innovation, and making healthcare systems more efficient—real-world implementation comes with significant challenges.
This workshop places a spotlight on the real-world challenges of health data sharing, technical, ethical, regulatory, and organizational. By bringing together stakeholders from academia, industry, and the public sector, we aim to create an open forum where obstacles can be discussed, and lessons can be shared.The primary goal is to explore the complexities of sharing clinical data in practice, what has worked, what has not, and how we can move forward together.
At the same time, we will not lose sight of the opportunities: better diagnosis and treatment, streamlined workflows, increased efficiency, and accelerated innovation in research, new therapies, and AI applications.
Whether you're working to improve data infrastructure, navigating compliance, or experimenting with tools like synthetic data or federated learning, this workshop is an opportunity to engage with peers facing similar hurdles and to foster collaboration across sectors.
Workshop Goals
- Provide real-world insight into health data sharing practices
- Foster open discussion on challenges and practical solutions
- Encourage collaboration across academia, healthcare institutions and industry.
- Involve government and policy makers to adopt best practices and strategies
- Highlight diverse perspectives and lived experiences
- Spark new data sharing initiatives and partnerships
Workshop Structure
The workshop is divided into two main parts, each designed to encourage open discussion, learning, and collaboration:
- Part 1 – Facing the Challenges Together
Session 1: Speed Presentations & Panel Discussion: Challenges Matter – Tell Us Yours!
Participants will present short, focused insights into challenges they’ve encountered when sharing health data. These will lead into an open panel discussion, where we explore:
- What went wrong, and why?
- How could it have been prevented?
- What solutions were found?
- If the project were repeated, what would be done differently?
The audience is encouraged to contribute questions and share their own experiences.
Session 2: Pitching Solutions
A series of brief presentations showcasing concrete solutions, either in use or in development, that address clinical data sharing challenges.
- Part 2 – Real-World Examples: Turning Vision into Practice
This session highlights practical case studies of democratizing health knowledge from the perspective of two healthcare providers inside and outside of Switzerland:
- University Hospital Basel, Switzerland
Presentation of the implemented solution and related use case(s) exemplifying data sharing with internal and external parties - Sheba Medical Center, Israel
Insights into their approach to data sharing and synthetic data use in clinical environments
Networking Apéro
Join us afterwards for informal networking over drinks and snacks.
Interested in participating?
Please register via this Google form.
Additionally, we warmly invite you to actively participate in the discussion by submitting an abstract to present your challenges and proposed solutions. Selected submissions will be invited to present during the pitching session.
Take this opportunity to share your experiences with the community and help drive new ideas forward together!
Contact:
Maren Diepenbruck & Raffaello Ferone
